Tuesday, June 30, 2009

punkin's house rules

1. Close all doors at all times, especially before watching movies or eating snacks.
2. Turn off all lights. If mom is cooking, she is allowed the stove light and the sink light only.
3. Shoes and socks are worn together. Socks are never worn alone.
4. If shoes are removed, socks must be removed. If socks are removed, this is grounds for removing all clothing.
5. I don't care if I had a snack at school; I get a snack every day when I come home. I prefer tortilla chips or popcorn and grape juice.
6. When I say, "dance," you dance. Get it?
7. The big couch is mine.

just a few things

Diluting the Zoloft in liquid? Not going so hot. He KNOWS. He just KNOWS that the icky stuff is in there. Ugh. I called the pharmacist to ask if I absolutely have to dilute it, because honestly struggling over 1mL of liquid versus 4oz of liquid seems easier. She doesn't understand why it needs to be diluted in the first place, so she told me to just do my best. I wish I could get it in pill form. He takes three pills (prevacid, melatonin, clonidine) every night with no problem.

Also no problem? The EYE DOCTOR. Yes, ladies and gentlemen, he was a rock star at the eye doctor today. Kiddos with FXS tend to have eye problems, so his pediatrician wanted to get him checked out. His eyesight is fine -- a little farsighted, but normal for his age -- and his eyes are healthy.

We talked about how he prefers the dark, and he said that people with blue eyes tend to be more sensitive to light. So that combined with his FXS is probably why he squints all the time.

The only bad part was when the assistant told me to lay him down -- and I did -- and she just shoved drops in his eyes. He totally freaked out, of course. Next time I will be able to warn him at least! But that was the only time anyone ever touched his face, which I think was part of why things went so smoothly.

While we waited FORTY MINUTES for his eyes to dilate, we got to sit in a dimly lit playroom with a TV and a door. (Doors are important.)

I was surprised that he was able to name the rather abstract symbols for the general test. They used videos and lights to engage him, which was very appropriate and effective. Overall it was a good experience, and I'm not scared at all to take him back in a year. Now, if they say he needs glasses next year, I may lose it. As his teacher commented, this is likely the response we would get if Punkin wore glasses: Eyes? Eyes? Off? Uh OH! Broken! Broken! I throw! Uh oh! Oh no! Broken! I throw! *Snap*

Sunday, June 28, 2009

public service announcement

Independence Day, better known as the Fourth of July, takes place on July 4th. Not June 27. Sometimes a person's power goes out from the storms and then the fire alarm loses its mind and groggy moms have to figure out how to MAKEITSTOPFORTHELOVE and really don't need the added pleasure of BOOM POP CRACK during sleeping hours. Remember: FOURTH of JULY celebrations generally occur on JULY 4.

P.S. If anyone knows how to reattach my alarm to the wall, that would be great.

Saturday, June 27, 2009

Friday, June 26, 2009

i'm 26

What in the world is this THING doing on my FACE? Also, my nose looks broken, no?

it's the little things

My new phone has navigation......(Just waiting for my family to quit chuckling and telling stories -- done yet? No? ..... Now? Okay.)....and I just typed in an address and almost squealed out loud at work, during naptime, when it told me to "turn right on Diehn Ave."

I am excited because I'm going out with the ladies (and possibly one man) from work and then playing volleyball. Margaritas, here I come!

Thursday, June 25, 2009

doh!

Sooo, Punkin really REALLY hates taking his liquid Zoloft. It tastes terrible, and my lame bribe of candy means nothing anymore. The other morning, I had to put the medicine on a piece of bread with jelly before he took it. We've been late every morning this week because we're wrestling each other over 1mL of liquid. And he's spilled so much of it that I had to refill it earlier than expected.

So I decided to do the obvious thing and have the next bottle flavored for a mere $3. When I got home, I read through the fine print I thought I had covered the first time around. However, I had missed something rather important. In my defense, although much of it was written in all caps, it was written in 5pt font three quarters of a way down the page: THIS MEDICINE MUST BE DILUTED BEFORE YOU TAKE IT. Mix the prescribed amount with 4 ounces of water, ginger ale, lemon-lime soda, lemonade, or orange juice. DO NOT MIX it with any other kind of liquid.

Oops.

And I had the medicine flavored grape, so I totally would have mixed it with soda since he can't have lemonade or orange juice. Hmmm. Guess it's grape water, coming up!

Also, I got a new phone, and I canNOT figure out how to use it. WOW.

Tuesday, June 23, 2009

did you get the memo?

note to punkin: STOP SPITTING. for. the. LOVE. i don't know why you're doing it, but you're doing it all the time and it needs to stop. you want my attention? just crawl on me or yell at me or grab my cell phone and hang up on my friend like you usually do. no need to spit. let me repeat myself. are you ready? okay, good. STOP SPITTING.

note to self: ask other moms how they deal with spitting. time-out = doesn't care. yelling = laughs in my face. cover his mouth with my hand = i get a slobbery hand. ignore = i get sprayed and so does everyone else within 10 feet of us.

note to punkin: STOP MAKING YOURSELF PUKE. ugh. we have been over this time and time again since you were a year old. just PUHL-EEZE keep all bodily fluids in your body until an appropriate time arises (ie: potty breaks).

note to self: find source of stink in car. not garbage. not poop shirt. maybe the carseat?

note to readers: why is it so hard to find shorts? they are either too long and tight on the thighs or too short and tight in the butt. and if i go up a size, they are too big and gappy in the waist. srsly. SERIOUSLY. i just want to stop sweating to death at work! please get back to me with your best advice ASAP. kthanxbye.

Monday, June 22, 2009

i'm here

I didn't disappear forever. I just feel completely exhausted. Oma, Punkin, and I went out of town this past weekend for a retirement party and Punkin did not do well. Therefore, Mommy did not do well. Bless Oma's heart for dealing with the both of us.

funny pictures of cats with captions
see more Lolcats and funny pictures

Wednesday, June 17, 2009

deep thought for the day

I love getting free groceries!

I don't love eliptical machines. Seriously, I'm like the only person who hates them.

I really want to eat pepperonni pizza. (I know, I know, I ALWAYS want that....)

I think NCIS is a good show.

I find it hilarious that someone from the Judge Joe Brown Show keeps calling me and letting someone named Rose know that they got her information from the tip line and would like to invite her to the show. Imagine how disappointed Rose is, waiting for her 15 minutes of simultaneous fame and retaliation, never to find peace.

My deep thought is that, "Cheap drinks are one of the top ten best things about living in the Midwest."

Tuesday, June 16, 2009

the things they learn!

So my Head CT came back normal, there was no blue crayon in sight. *sigh* So now I am being referred to a neurologist.

And now, the fireworks cheer:

video

Monday, June 15, 2009

two things, and only two things

One, I'm pretty sure that Punkin's managed, in the past week, to make up for four years of not hugging me.

And two, my doctor told me on May 26 that she would order a CAT Scan for me to investigate my vision problems (that I doubt very much at this point are due to migraines). Two calls to her office and three weeks later, I finally had it done (last Wednesday). They called last Friday with the results but I missed them and they didn't return my call today. I hate waiting. For anything. I hate it.

That's my story. Also, I really want some white cake with white frosting -- buttercream, not whipped -- and some flowers. Sugar flowers, not smelly ones. I mean, the real ones are nice and all, but they can't feed my sugar addiction.

Sunday, June 14, 2009

i think he loves his oma and opa

" PURSE! YEAH! Here go!"
"Put it on? SEE? Kay. Go car?"
"Where are we going?"
"Car. Moma Bopa's house."
He's sick again. The doctor said it could be a sinus infection or it could be strep (didn't want to traumatize him with a test). Either way, he's on antibiotics and slightly emotional. Of course, I did shut his fingers in the car door yesterday, so it's been kind of a rough weekend.

Tuesday, June 9, 2009

CUTE!

Punkin drove a "tractor" for the first time today. It was an Allis Chalmers, which his late Great Grandpa would very much appreciate. I'm pretty sure Opa racked up some cool points for this!

medication update

I forgot to mention in the last post that we are NOT Packers fans. Auntie is a Packers fan, and sometimes Punkin wants to wear a green shirt. *sigh*

I called the doctor and told him that the Sertraline (Zoloft) is amazing; Punkin hasn't hit his head on the wall/floor or scratched, hit or gagged himself in a week. He used to do those things multiple times a day. He is generally happy and agreeable. I mean, he's really that way anyway, but now he's not having fits of rage mixed in with bouts of joy.

Also, he played with a KOOSH BALL. Also, he kissed me ON THE LIPS. I haven't gotten a kiss on my face since he was a baby. I mean, maybe one or two, but that is IT. And real, around-the-neck hugs were also a rarity. His teachers agree that he is just so much fun, which I honestly didn't know was possible because he's pretty fun to begin with. =)

He may be talking more, but like his speech pathologist said, "If he doesn't slow down, it won't make any difference!" Basically the percentage of intelligible words is the same, he's just saying more. So instead of understanding 20% of 50 words, she is understanding 20% of 100 words.

The problem, I told the doctor, is with the lack of Clonidine. The child has no impulse control. I forgot how much work it used to be just to walk to the car or sit at the table. How could I forget so quickly? God's mercy, perhaps. =) I mean, I let go of his hand to open the door to his school and he's almost in the street. The kid has roadrunner in his genes.

So he checked and gave me the go-ahead to give him the Clonidine again. I double-checked with the pharmacist because, well, he's my baby and phramacists know things, and she agreed it was fine. So I'm giving the Clonidine at night with his Prevacid (acid reflux) and the Zoloft in the morning with a lot of candy. That stuff must taste disgusting because Punkin doesn't complain about taking medicine, but he almost spit it out.

Anyway, he's asleep and I'm happy. And hopefully this sticks for a while.

Oh, and The Very Hungry Caterpillar movie is available from Disney Movie Club. It's basically that story and four others set to minimal animation and music. Very cute. Scholastic has similar movies, the most popular probably being Chicka Chicka Boom Boom.

Sunday, June 7, 2009

videos

video

So, we couldn't get him to sit at the table for longer than 30 seconds (calling the doctor tomorrow, FOR SURE), but he sure was passing out the love!

video

And here he is at Oma and Opa's house watching his favorite movie, The Very Hungry Caterpillar. This is a decent showing of his narrating skills. He anticipates every scene. =) I tried to translate, but good luck!

Friday, June 5, 2009

still hyper, though

We started the Zoloft to help with Punkin's anxiety and mood stability. Today, he played with a giant koosh ball. Like, he CHOSE to play with it. Usually he picks it up by ONE strand, tosses it aside and says, "NO." But today he pushed it around the room with both hands!!!

Thursday, June 4, 2009

he's a lover, not a hater

We have stopped Clonidine and started Zoloft.

He is SO hyper today and had a mild night terror last night. I am trying to remain positive and open-minded. It could very well be a coincidence. However, if I am robbed of my sleep, IT will hit the fan. =) I am NOT doing that again. The easiest solution would be to up his dose of melatonin, which is probably appropriate because he only takes 1mg.

Can you tell that I am not hyper? I am Tired. See that? Tired with a capital T.

Punkin has always had a way of making grown-ups do what he wants. It probably started because, like I hear from other moms, everyone was so excited to hear him talking that we couldn't possibly deny him the simple pleasure of dancing when he yelled "DANCE!"

These days he sounds like a personal trainer: RUN! SPIN! JUMP! SIT DOWN! STAND UP! RUN! RUN! It's rather exhausting, but I think he may have found a career path. Much like my Great Uncle is the "mayor" of his nursing home, Punkin can be the aerobics instructor at his group home some day. (That day is a long day from now, so let's not panic; we know who we are, and we're panicking. But the Lord provides.)

Did I tell you that I'm sitting on my balcony, drinking a beer, and blogging? Did I tell you how happy that makes me?

Anyway, back to Mr. Bossy Pants. I have respite on Tuesdays, and I often come home talking on the phone to Jennie. Well, this past Tuesday, that was completely unacceptable to Punkin, who wanted nothing less than 110% of my attention. He proceeded to grab the phone, say, "bye!" and tell me to put it in my purse. Once the respite worker left, we ate dinner, after which he handed me my purse and said, "Put it on. Go car. Oma Opa's house? OKAYEE." I gave in because, well, he's not asking for the moon or anything.

He found me. It's pretty funny because he's standing at the screen door in his diaper, trying not to look at me so that I don't see him slowly creaking the door open. Like when a cat "hides" in the grass. If I can't see you, then you can't see me.

(10 minutes later.) OKAY. Not funny anymore. Hit annoying and encroaching on frustrating. Don't look at him, don't talk, just put him back in bed. Just put him back in bed.

I really hate playing the medication game, and I know that we are only just passing "Go" at this point. Hopefully we'll find a happy balance that allows Punkin to be relaxed, comfortable, focused, silly, smart, and friendly. So far today he's been VERY friendly. I got TWO kisses ON THE LIPS and four REAL hugs -- with his arms around my neck and everything! Life is good.

p.s. I totally won; he's sleeping.

Monday, June 1, 2009

friends

Punkin's had two really good typically developing friends since he started preschool at 6 weeks old. They have been with him since he was in the infant/toddler room, the two year old room, and now they see each other at various parts of the day. And now, in his own room, he's made a third good friend who has overall developmental delays.

And this fall, they are ALL LEAVING for kindergarten.

In fact, the boy from his room is done for the year on Friday. I think this may be a bit of a struggle emotionally for both of us. I wonder if and when we will find more typically developing kids to accept him blindly and befriend him without question, even when he sits on them or hangs upside down or gives them backwards hugs. I know it will happen, I just know that these boys will be missed.

And I may need to come up with a special treat for those special boys. Any ideas?